Diseases & Disorders

Allergy & Asthma Network- A network for people who suffer from allergies and asthma, set up by scientists at Eli Lilly and Company. . USA Allergy and Asthma Network/Mothers of Asthmatics, Inc.- Homepage of Mothers of Asthmatics Inc., an association of patients who aim to provide news and information about asthma and allergies. . UK Allergy Clean Environments- Allergy Clean Environments are a company that offer products to asthma and allergy sufferers to in allergy proofing their homes. . USA ALS Interest Group Archive of Digests- The ALS Interest Group is an electronic discussion group which connects people with ALS (Lou Gehrig's disease)/MND, medical researchers and others with an interest in the condition. This is an archive not a listserv or mailing list. If you want to contribute you must contact the owner personally. Contact details are provided. . UK Alzheimer Web- Alzheimer Web is a resource for researchers in the field of Alzheimer's disease and for people who have an interest in research developments. . USA Alzheimer's Association- Homepage of the American Altzhiemers Association. There is searchable information for caregivers, practitioners and details of medical resources relating to alzheimer's disease. . USA ARE YOU BREATHING FREE ?- Homepage of the Asthma Zero Mortality Coalition - Breathing Free Room. They provide all the latest stories, statistics and resources concerning asthma. There is also the facility to contact international experts. . USA ASMANET- An information network for Asthma. There are several links to other major sites concerned with asthma, details of books, frequently asked questions etc. Much general information. . USA Association for Glycogen Storage Disease- This site provides basic information about the glycogen storage diseases. The information is intended to be of use to people affected by one of the glycogen storage diseases, their families and other interested parties. . UK ASTHMA ADVICE- Good general information on asthma given by Michael LeNoir, M.D. There is facility to ask your own questions and review a history of previous questions and answers. . USA Asthma FAQ'S- Pages of FAQ'S (Frequently asked Questions) and answers about asthma. . USA Bug Bytes- Bug Bytes provides information about current issues in Infectious Diseases. Updated biweekly, brief details are avaliable on diagnosis, therapy, or biology of an infectious disease. . USA candid-dementia- Counselling and Diagnosis in Dementia (candid-dementia) is a list for professionals and non-professionals looking after patients with young onset dementia (Pick's disease, Alzheimer's disease, Prion diseases and other unusual dementias), that aims to promote discussion, support and advice. . UK CDC- Homepage for the Centers for Disease Control and Prevention (CDC), with access to all of it's eleven Centers, Institutes and Offices. . USA CDC Gopher- Official gopher server for the Centers for Disease Control. . USA CF-WEB- The Cystic Fibrosis Website, an on-line archive of information about cystic fibrosis. Information avaliable for Non-Technical Readers as well as Doctors and Researchers. . USA Chorus- CHORUS is a "quick reference" hypertext for physicians and medical students containing over 1000 documents covering diseases, radiological findings, differential-diagnosis lists ("gamuts"), pertinent anatomy, pathology, and physiology. The documents are indexed by organ system and are interconnected. . USA Christie CRC Research Centre- Homepage of the Christie Cancer Researsh Centre . UK CYSTIC FIBROSIS AUDIT GROUP- CFAG is part of the Department of Child Health, University of Dundee. Information avaliable includes links to The Scottish Cystic Fibrosis Group database, The United Kingdom Cystic Fibrosis database, The Dundee Cystic Fibrosis Clinic Management System, The European Cystic Fibrosis database standard and The Cystic Fibrosis Trust. . UK Diving Diseases Research Centre- A leading research centre for Diving Diseases and hyperbaric treatment. . UK Epilepsy List- A mailing list for epilepsey and seizure disorders. . USA Family Health- Family health is a daily series of 2 1/2 minute audio programs designed to reach a general listening audience with practical, easy-to-understand answers to some of the most frequently asked questions about health and health care. The series deals with a wide variety of health-related subjects. The focus of the series is on the common health problems about which people are likely to ask their family physicians. . USA Fibromyalgia Information Resource- Information on FMS and related disorders. There is also a Fibromyalgia support group on the internet called Fibrom-L. Anyone interested in Fibromyalgia is welcome to join. . USA Healthwise- Healthwise is the Health Education and Wellness program of Columbia University Health Service. . USA Hernia Information- Useful information on surgery for hernia. Site provided by commercial provider of surgery centres. . UK inborn-errors- This list invites discussion on research into Inherited Metabolic Diseases. Aspects covered include biochemistry and diagnostics, genetics, clinical, nutritional and treatment aspects and general discussion. . UK Inflammatory Bowel Disease- Frequently asked questions about Inflammatory Bowel Disease. . USA Infosci's Home Page- Homepage providing links to many Multiple Sclerosis societies and newsgroups. Information avaliable for patients and medical practitioners. However, most is presented in a form that can be understood by the layperson. . USA Jooly's Joint- Jooly's Joint is a penpal service set up specifically for people who live with MS. It is intended for people with MS who feel they could benefit from the opportunity to share their problems, worries, questions with others who suffer from MS. Although based in the UK, the service is open to everyone with MS, from all parts of the world. . UK Lewynet- Lewynet provides information for workers, patients or carers with an interest in dementia with lewy bodies. A short introduction on the subject and a list of forthcoming publications is avaliable. There are also links to sites dealing specifically with Parkinson's and Altzheimers disease. . UK Liverpool School of Tropical Medicine- The Liverpool School of Tropical Medicine (LSTM) is a registered charity affiliated to the University of Liverpool. This homepage gives of their research interests, information about courses on offer and a contact point for Liverpool Associates In Tropical Health Limited (LATH). . UK Lymphedema Homepage- The National Lymphedema Network (NLN) homepage. The NLN is an internationally recognized, non-profit organization that provides education and support to patients, health care professionals and the general public about the prevention and management of primary and secondary lymphedema. . USA Male Care Info- Site providing advice on male impotence. . USA Med Help International- The homepage of Med Help International, a non-profit organisation that provides qualified medical information, encompassing most illnesses and diseases, to patients and their families. All of the information avaliable is presented in non-technical terminology. There are also links to other medical resources on the Internet. . INT'L MS NEWS FROM SUNNY ARIZONA- This site contains considerable information on Multiple Sclerosis, including general medical information, information on medication, organisations, books, nutrition, recepies, equiptment and a glossary. . USA Multiple Sclerosis Foundation, Inc.- This homepage provides information about the services available through the Multiple Sclerosis Foundation, Inc., as well as links to other sources of information about MS. The MSF also offers contemporary, one-on-one support call staffers to answer your questions and concerns about issues dealing with MS. . USA Multiple Sclerosis Menu- A large number of articles addressing many aspects of Multiple Sclerosis. . USA Mycob-research- This list provides a forum for discussion on all matters related to mycobacterial research with archives of communications to date. . UK National Adrenal Diseases Foundation (NADF)- Homepage of the NADF where all of their literature can be accessed, along with the latest news in the field. . USA National Institute of Allergy and Infectious Diseases- USA based Institute . USA National Jewish Center for Immunology and Respiratory Medicine- A large amount of information covering several aspects of respiratory medicine, including many different types of allergies, asthma, peak flow monitoring, bronchiectasis, treatments, quitting smoking etc. . USA Parkinson's Disease- This page provides links to many of the major Parkinson'd Disease sites on the Internet. . USA Parkinson's Disease Information Centre- Homepage for the Parkinson's Disease Information Centre. Information avaliable is limited at present as the site is being moved. There are still some valuable resources however. . USA Parkinson's Society- The Parkinson's Society is based in Ottawa-Carleton, and is a voluntary, non-profit organization dedicated to improving the quality of life for persons with Parkinson's disease and their families. Both information on the disease and non-medical advice are avaliable. . USA Parkinson's Victory- Information from and around a group of Loma Linda neurosurgeons, who claim to be able to control and reverse the symptoms of Parkinson's for most patients. . USA Parkinson's Web- A large resourse directory on Parkinson's Disease aimed at people with the disease, their families and friends and caregivers throughout the world. Information avaliable includes news bullitens, publications, signs and symptoms, medical and surgical treatment, reearch, how to cope, and links to other net sites. . USA Parkinsons Discussion group- A maillist open to anyone wishing to discuss any apect of Parkinson's Disease . Subscription is required, by easy to follow guide. . USA Polio Survivors Page- "These pages are dedicated to those who fought dragons in their youth and now -- when the world has grown cold -- must fight again" . USA Primer on Rheumatic Diseases- Pages providing an introduction to rheumatic diseases. Produced by the Department of Rheumatology at the University of Birmingham, the information here is intended for readers with no proir medical knowledge. The topics covered include a short glossary, sections on inflammatory arthritis, non-inflammatory arthritis (osteoarthritis), back pain and sciatica, connective tissue disease and soft tissue rheumatism. Links to material at other sites are given where appropriate. . UK Renalnet- An information service created to provide access to resources related to the care of patients with renal disease and the medical specialty of Nephrology. RENALNET is maintained by Gamewood Data Systems, Inc. . USA S.N.O.R.E.- Homepage of S.N.O.R.E., Sleep apNoea Online Resource for Education. Information is avaliable on sleep apnoea and other sleep disorders. . USA seronegative-arthritis- A list designed to promote discussion and collaboration amongst researchers who have an interest in various forms of seronegative arthritis, including ankylosing spondylitis, reactive arthritis, psoriatic arthritis, arthritis related to bowel inflammation and Behcet's syndrome. . UK Sleep Medicine Home Page- The Sleep Medicine Homepage addresses all aspects of sleep including, the physiology of sleep, clinical sleep medicine, sleep research, federal and state information, patient information, and business-related groups. . USA Sleepnet- The Sleepnet homepage, providing information on Sleep Disorders, Support Groups, The School of Sleep Medicine, National Center on Sleep Disorders Research, Sleep Related Products and Equipment and links to about 50 related sites. . USA The Brunel MS Register- The Brunel Multiple Sclerosis Research Unit homepage. A series of reports arising from a longitudinal survey conducted during the 1980's is avaliable. Details of current research will be made avaliable in the future. There is also a list of publications concerning MS and links to other sites of interest. . UK The FAQ of the Asthma USENET newsgroup- A newsgroup that provides a forum for discussion of asthma, its symptoms, causes, and forms of treatment. Also avaliable are answers to the most frequently asked questions on the newsgroup. . USA The Mulligan Foundation- The Mulligan Foundation is a non-profit organization which provides medical research and quality of life information on Parkinson's disease. These pages are designed for people affected by the disease, their families, friends, and caregivers. . USA The Pain Institute in Chicago (PIIC)- The Pain Institute in Chicago is a center for management and research in chronic pain. Information is avaliable on the Institutes staff and their current research. Coverage includes reflex sympathetic dystrophy, fibromyalgia, backache, migraine and cancer pain. . USA THE TREATMENT OF SLEEP DISORDERS OF OLDER PEOPLE- Part of the National Institutes of Health Consensus Development Conference Statement. . USA Unified Parkinson Disease Rating Scale- The Unified Parkinson Disease Rating Scale (UPDRS) is a rating tool designed to track the longitudinal course of Parkinson's Disease. It is based on assessment of 1)Mentation, Behavior, and Mood, 2)Activities of daily living and 3)Motor sections. These parameters are evaluated by interview and a rating is given (some sections require multiple grades assigned to each extremity). . USA

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